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Tag:blood disorder
Posted on: August 5, 2011 11:52 am
 

Fisher announces Fanconi amenia research fund

Posted by Chip Patterson

On Friday, Florida State head coach Jimbo Fisher met with the media to discuss the health of his 6-year-old son Ethan, who suffers from Fanconi anemia. Standing with his wife, Candi, and two sons, Fisher announced the creation of a new national fund to raise money for Fanconi anemia.

The Kidz 1st Fund will support families affected by the Fanconi anemia, provide education and awareness about the disease, and raise money with the intention of finding a cure. The second-year head coach announced that Candi would be the face of the organization, allowing Fisher to maintain the responsibilities associated with the football program.

"This foundation fund has taken a huge weight off my shoulders," Fisher remarked, explaining that there was nothing more he could do than provide the experts with the resources they need to find a cure.

Fanconi anemia is primarily a blood disease, and can affect all systems in the body leading to bone marrow failure. Margaret MacMillan, M.D., from the University of Minnesota, is the family's specialist for Ethan and one of the nation's leading Fanconi amenia researchers. MacMillan announced that the survival rate for the potentially life-threatening disease has jumped from 30 percent to greater than 80 percent in the last 15 years, but says they will not stop their efforts until they have reached 100 percent survival. She said the Fisher's fundraising could be a "game changer" in the fight against the disease.

I encourage you to visit the website for the Fisher's Kidz 1st Fund to learn more about the battle against Fanconi amenia. If you feel inclined to give, 90 cents of every dollar goes directly towards the fight against the disease. As always, our thoughts are with the Fisher family as they continue this ongoing challenge.

For more information visit www.Kidz1stFund.com 
 
 
 
 
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